Hey Everyone. Wow, it's been a while, and a lot has happened, but at the same time nothing has happened. Paul is still stuck in Canada, awaiting the return of his Passport with VISA inserted! Today (Thursday) marks 11 weeks since they the US Consulate received our info. (This is 7 weeks longer than we were told it would take). We have called, emailed, talked to US Senators, and other VIPs, and still nothing. Ah well...we are getting really really good at waiting! Patience is one virtue we have perfected.
On to more important information- Claire's Appointment.
Monday, the 28th, we met with Dr. Maugans for our routine, Neurology, check up. He said that Claire's head is still growing rapidly- 27 1/2 cm. At this age the growth of her head should be plateauing. However, after looking at the growth chart her head is WAY above where it should be. At the same time, it still matches her rather large body (22 1/2 lbs, and 27 1/2 inches long. at 7 months!) So, a little alarmed, he ordered an MRI. which we had done Wednesday. He said again that it could just be that she has her father's head ( i laughed a little on the inside), but it is something that needs to be checked into. He also started talking about her bladder and the results of the 3 Urology tests that we had done last month. The Urologist never called with the results, which I assumed was a good thing. We had a follow up appointment scheduled with the Spina Bifida Clinic in mid July, where we would see Dr. Jackson (Urologist), but they did act like it was urgent. So when Dr. Maugans, asked if we had heard the results of the Urology tests, i knew there was something up. He said that Claire has a Degenerative Bladder. I haven't done any research on this yet, but he simply said that her bladder is not working correctly. There is a 50 percent chance that we will have to start Cathing her. Also, as of 6 weeks ago her dirty diapers have been slowing down. She was going everyday, multiple times, and now is going every other day or less. (I know, TMI, right?) I just assumed this was normal....Ha...i didn't exactly chart Eva's dirty diapers. Soooo....we might have to put her on some laxatives. Ha, I must have looked really awful when i was in the office because both the doctor and nurses were really reassuring me when i got this news. They said , "she won't know the difference, this is just another way of living life!". So true. It was a little hard to take when you are constantly getting such great news all of the time. Even in hard times like these there are always blessings that go along with it. I've realized that especially this week. Though we are not all together, and Claire has a few minor issues, we are healthy, I have a wonderful husband and perfect babies, helpful and loving family and friends just a call away, and a Faithful God to always cry to. We are ok!
Please pray for good friends of the family this week.....A former homeschool family, with 4 kids dad just passed away this week. There mother passed away about 8 years ago. Their kids range from 22-11 years. I'm sure they are hurting terribly and could really use your prayers. Weeks like these really make you appreciate what you have. So, we are still blessed.
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